HOW TO LIVE YOUR BREAST LIFE WITH STAGE IV CANCER
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Where is my time machine?

3/3/2015

3 Comments

 
Before I get started...I hope I am not offending anyone with this blog and if I am then...O'well.  But as you know I am very honest in my thoughts and in my writing.  Im not one to beat around the bush with my feelings...ever.  


Sometimes I will look at women with their long beautiful hair and I think to myself, you have no idea.  As you sit there and flip your hair or throw it in to a ponytail....you have no idea how quickly that luxury can be stripped away from you.  I don't wish this upon anyone, please don't take it that way.  In all honesty, I just wish people were more grateful for the little luxuries they have.  The little luxuries that cancer seems to take away from its chosen.  And to all of those who complain daily about the little stresses of every day life...I could only wish that my life would go back to those simple days.  Don't get me wrong, I was a complainer too, but I find myself getting angry with those sort of people now.  You just have no idea.  On the other hand, I wouldn't expect you to have any idea and hope that you never will.  

I would give anything to go back to the way my life was in October of 2013.  Sure, I had my share of stress going on but stress took on an entirely new meaning once I was diagnosed with cancer.  Instead of worrying about how the laundry was going to get done, or why my kid wouldn't eat the spaghetti I just made, I now drown myself in the stress of my mortality.  The fact of the matter is, I did face death.  Thankfully, it did not take me, but I stared it directly in the face.   And in a sense, my old self did die.  As much as I try to go back to "Jen before cancer", its just not possible.  According to my therapist, I am going through a grieving process now.  I am grieving the loss of ME.  I am resentful, I am angry, and I am sad.  I miss her and I find myself doing everything I can to find her again...though it seems impossible.  So at what point do I accept that she is gone and move on with this new person I have become?  Will those closest to me still love me the same?  Do they mourn the loss of who I once was?  Why do I continue to let this stupid cancer crap consume me every single day of my life!?

Nothing comes simple anymore but I have learned to find patience with that.  I know physically that everything will return to a place of somewhat normal again.  My hair will grow back, my bones will stop aching all of the time, and running 1 mile won't feel like my 10th mile.  I can deal with all of that.  I can find patience in that.  I have a hard time finding patience within how I handle all of this mentally.  To me, that part of it seems permanent.  Though my depression has somewhat subsided and I am able to rationalize my thoughts a little better, I still struggle on a daily basis.  I am scared.  When I promised myself I would no longer live in fear...I still sit here scared.  But my fears aren't that I am going to die in a plane crash or that someone is going to break in my house and shoot me.  My fears are that my cancer is going to return and instead of me dying some quick death....I am going to die a slow agonizing death from cancer.  I lived this.  Cancer was a part of me.  It seems like a really bad nightmare or a really sad movie that I swear I have seen a million times it wasn't.  It actually happened to me.  It.  actually.   happened.   

Something that I really struggle with is this.  They say stress causes inflammation in the body which contributes to cancer.  So here I am constantly fighting myself to not be stressed so that I don't get cancer again, but come on.  Its impossible.  Then I am left feeling guilty for feeling stressed when I am trying to do everything else to remain healthy.  How do you do it all?  Is it even possible to have a cancer diagnosis and live to see 95?  Not to mention that the stress and fears I deal with everyday only enhance all of those little stresses I wish were the only things I had to deal with. Not sure if that even makes sense...

I would love a time machine.  Take me back to when I "thought" life was tough.  Take me back to when I didn't worry about death every minute of every hour.  You can have my hair, take it.  That was the easiest part of this entire journey.  But just take me back to when every day wasn't consumed with scary thoughts.  I am not angry at those people who bitch and wine about their daily struggles with kids or family, or how they had a bad hair cut and so on.  I still do find myself bitching.  But if that was ALL I had to worry about, my life would be near perfect.  I am not sure how many readers I have who haven't ever had cancer or a life threatening illness.  I just hope that after reading this you can find some patience and gratefulness towards your life.  Be thankful for those little challenges.  

Honestly, when I started this particular post I had no idea what was going to come out.  I don't want it to sound like I am in some really dark, horrible place right now because I am not.  I just find myself reminiscing and wishing I could go back to that life pre-cancer.  That wasn't the hand I was dealt though.  I need to continue on my path.  I have been promised by other survivors, this gets easier as time goes on.  Part of my healing is grieving my old self and so I move on to the next stage in this process.  I am thankful for each and every day I am given.  I am thankful for my current state of health.  I just wish it was easier.  At times I feel bi-polar because I can't seem to stabilize my thoughts...ever.  

This weekend I will be attending the Young Survivors Coalition in Houston, TX with a friend and fellow survivor I met through social media.  While there, I will meet up with a few others I have met through this blog.  Its a rewarding feeling to know that I have been an inspiration to even just one person or that in some small way I have helped someone else through out their journey.  I know this weekend will be an amazing one filled with hope, survivorship, and friends. Thousands of strangers who don't know a thing about each other, but all share one HUGE life experience with one another.  I never asked to be a part of this club but I am.  The bi-polar part of me hates that I have to attend a conference to find some sort of peace but in reality...I am thankful for the opportunity and people it has and will bring in to my life.  

On a separate note, today marks one year since my last chemo.  A huge milestone in my book.  This day last year marked the end of the most challenging 4 months of my life.  At times, I truly thought the chemo was going to kill me.  That horrible poison dripping in my veins followed by handfuls of meds to decrease the side effects I would deal with.  March 3, marked the end of all of that for me.  I had 4 amazing best friends carry me through it.  I had a husband who dropped just about everything to care of me in more ways than I ever could have wished for.  A mother who left my dad for 6 months to help our family get through it.  A son and daughter who embraced my sickness and were never ashamed of their bald stepmom.  2 cousins who I became very close with.  2 brothers who probably had no clue what to do to help me but did their best and without many words said....I knew it was hard for them to watch me suffer.  Some of my friendships fizzled out and others became much stronger.  But here I am.  Alive.  I survived that which was meant to kill me.  Though parts of me have been stripped away...in time I will find the new me.  


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3 Comments

Week one:  My quest for happiness

1/14/2015

1 Comment

 
It has been a week since I let the ugly truth out about my depression.  I have learned through out this process that depression is a roller coaster.  Sometimes, it makes me feel bi-polar and I say that in the most light hearted way possible.  I am not bi-polar, however, the good moments come and go and the bad moments make their appearances as well.  I never know when its going to happen it just does - and I am just along for the ride.  With that being said...I have decided I am going to write more frequent, shorter posts going forward.  I want you to come along this journey with me both for myself and for you.  I want to share with you what works for me and show you that its possible.  That life will and can go on after this.  My goal is to prove that to you, and to myself. 


So what has the last week been like for me?  First of all, it was so beneficial for me to put my feelings out there.  Whether it was seen by 2 or 500 people, it was good for me to let everyone know where I truly stand.  It was the beginning of my "quest for happiness".  So this last week I set some goals for myself and I made sure that I stuck to those goals.  They were not out of line and they weren't running out and saving the world.  They were simple. 

Wake up at 8AM
Take Vitamins
Drink Coffee and EAT BREAKFAST!!!
10AM GYM - NO EXCUSES
12PM - EAT LUNCH
Rest of the day - whatever the hell I damn well please which usually consisted of my daily errands and some work here and there

Right now, my focus is not on my work.  It is on me, myself and I.  Having those simple goals every morning, set a mood every day.  There were 2 days specifically that I wanted to stay in bed and not do anything.  I wanted to stay in my warm cozy bed and watch TV all day with my door shut.  I was cold, in pain, and tired.  I knew I would have those days and I questioned if my depression would stand in front of me.  I made the decision ahead of time that I wasn't going to allow that to happen.  I have also been texting a good friend of mine, who I met in my support group, every day.  Danae, Thank you.  Thank you for being who you are to me on this journey.  It is people like you who inspire, motivate, and encourage others.  It was such a simple thing to do, and I have thought of our texts every day.  I didn't want to send Danae a text saying...bad day...didn't work out.  I wanted to send Danae a text that said...Felt like shit today but worked out anyways, I feel better now.  And so I did.  I made sure every day she checked in, or that I checked in, that I was sticking to MY goals.  Danae read my blog last week and told me we would check in every day together to push each other.  We have done just that and I recommend you do the same.  I can tell you it has been that extra little push I needed each day. 

Aside from the gym, I started Acupuncture again.  I also started doing some pressure point massage through my acupuncturist.  I started taking a supplement called Intramax which is an amazing liquid supplement.  Instead of going on antidepressants, I chose to take the more holistic route, though I am taking 5htp which is a natural mood enhancing supplement.  As I learn more about these different options, I will share them with you.  None of these are overnight fixes - its a process - one that I believe in and will continue to pursue. 

One thing that I am working on is this.  I am trying to go back to some of my old habits pre-cancer.  I made this decision so that I could get a little piece of Jen back.  That meant joining the gym I was at before cancer and start taking the classes I took pre-cancer.  I am focusing on remembering what made me happy before I was diagnosed and I am going to do everything I can to bring those things back in to my life.  I think it is so easy to lose yourself in the fog of cancer and to allow it to define you in some way.  I decided I needed to rediscover those little "things" that I used to do that brought me joy - like when I did the "bird pose" for the first time in my gym class.  Those simple "things".  They made me happy.  They made me feel good about myself and so I will strive to find those little things again. 

I feel slightly better.  Doing things for myself, sticking to a simple schedule, and reaching out to those who understand what I am experiencing has been very beneficial for me this last week.  Meditation and breathing as gotten me through those moments of anxiety.  Sure, I have still had my breakdowns, but I don't feel so lost right now.  As much as I would never wish any of this on anyone...I was happy to see the outpouring of support from my readers.  Your comments, emails, and posts on facebook truly mean the world to me.  I received emails from people, totally unrelated to cancer, but in relation to depression, offering their advice.  It really does mean everything to me.  I felt so alone last week...alienated.  It was YOU, my readers, who made me realize I am not alone, who inspired me to try different things to cope with this, and who have reminded me that there is an end to this.  I believe that now.


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1 Comment

Shhh...It's a Secret...the side to cancer no one prepares you for

1/7/2015

9 Comments

 
I am not going to apologize for the lack of posts here lately.  For some reason, unbeknownst to me, emotionally, thinks suddenly became very difficult.  I have dreaded writing in my blog lately because I didn’t want to pretend everything was okay, but at the same time, I wasn’t ready to face this.  There is a side to cancer no one talks about and I have my own reasoning for why this might be.  Beating cancer is one thing…living with the effects of cancer is an entirely different story.  So here is mine…

There isn’t one specific moment that I can pinpoint triggered any of this.  It just happened.  I suddenly became depressed…not sad…but uncontrollably depressed.  Over the last few weeks, I have tried so hard to figure out why.  I was doing so well…why is this happening?  Why can’t I move on? Why am I living and obsessing over something so awful that happened?  Really, I am not “living” at all.  I was happy spending my days in my bedroom.  I was happy not talking to anyone.  I was happy living in my own little world while the rest of the world had no clue what was going on inside of my head.  Even though sleep is all I wanted to do, not much if it was happening because of my racing mind.  I love food, but eating wasn’t a priority to me.  I have all the clear signs of depression, and at first, it was hard for me accept this.  It just isn’t me – It’s not who I am.  I like to laugh, I like to be goofy, and I like to be around people.  What I don’t like, is crying every day, yet that seems to have become a regular occurrence these days.  So instead of hiding it, which only makes it worse, I figured I would write about it.  After all, half the reason I write in this blog is because it’s therapeutic.  So here goes…

I feel like I am standing still while the entire world is spinning around me.  While everyone else is living their lives I am stuck in the last year of mine.  My family and friends all took care of me, whether from near or far.  Friends from the past popped out of the word work because I was sick.  I received cards, and gifts, and phone calls and texts from everyone who was surprised yet concerned about me.  Then cancer left my body…and most of those people disappeared.  While I don’t demand or need the attention, I sometimes wonder why they even made that appearance.  Let me make something very clear to those that don’t understand anything about cancer, because I can promise you, this feeling is mutual amongst most survivors.  Just because I am cancer free, does not mean I am okay.  In fact…fighting cancer was easier than dealing with the fears and depression I live with daily now.  I was confident one day that my cancer would be gone.  I never imagined in a million years it would haunt me every single day thereafter.  It is difficult not knowing when this is going to go away.  I fear this is my life now.  As much as I try to not let it be, the fact of the matter is, cancer happened to me.  I am scared I will live in fear for the rest of my life and that I am going to miss out on living life the way life is meant to be lived.  For someone who doesn’t understand this...it is not as simple as just waking up and deciding to not live this way anymore.  Or maybe it is…but right now…I am not processing that option. 

I feel resentful and angry at people for continuing to live their lives around me, while I am stuck.  That might sound crazy to you…but maybe it’s more of a jealousy feeling than anything else.  I WISH I could go about my life and be “Jen before cancer”.  It is frustrating to me that as much as I would love that…it’s not possible.  I don’t doubt that I can be a better Jen once I get past this…but getting over this mountain is pretty challenging.  When will that time come?  When will this get better?  I WANT it to all just go away, everything about it.  The most frustrating part, is feeling alone.  No one around me understands what I am going through.  All of the tears and words in the world couldn’t  give it justice.  It’s a circling of emotions, of fears, of challenges, of wanting to do something and being so determined to do it, but not having the desire.   It’s frustrating losing my train of thought mid-sentence and feeling like I sound like a complete idiot.  It’s not remembering what I did less than 24 hours ago or being told the same thing 55 times.  It’s the physical toll that chemo took on my body physically and mentally.  I am 34 and I feel like I am trapped in a 65 year old body with aches and pains and forgetfulness.  I have ZERO control over much of anything anymore and maybe cancer happened to me, to teach me that I didn’t need to be in control all of the time.  Maybe that was the lesson I was supposed to learn.  I don’t know…but I do know this…

You can tell me I am strong all you want but those words don’t register to me.  I fought because I had too and you would do the same if you were told the same news.  You don’t just give up and let a disease take over your body.  You fight back.  I am not strong because I did this, I am human.  I am still fighting and a battle that I thought at one point I won…now feels like I am losing.   Cancer is winning right now…because it still makes its daily appearance in my head.  I am so f’ing angry at cancer right now.  I have no answers, no timeline for when these feelings will go away – so my only choice is to fight them…just as I did my cancer.  I want to make something very clear to those closest to me…

Pardon me for my lack of emails, texts, or phone calls.  I am busy taking care of myself right now.  If you’re wondering how I am doing ask me.  My life isn’t cancer – don’t assume that it is.  In fact, I feel the most normal when I am on the phone talking about my life outside of cancer.  I am still a supportive wife, the best stepmom you’ll ever meet, a daughter, a sister, and an amazing friend.  Those things about me have not and will never change but I am rediscovering what it is about this life that brings me joy. At one point, before cancer, those questions didn’t exist.  Sure I was always making changes and working on becoming a better person but this is different.  I feel as though I am rebuilding myself.  The foundation will always be there but I am building a new home for Jen.  Accepting that is difficult but I want to believe it’s going to result in a beautiful ending.   On the positive side of that, is that fact that I get to choose who that person will be.  I get to rediscover what I am passionate about, what brings me joy, what makes me cry, and what makes me laugh.  My hope is that my closest friends and family will join me in this portion of journey.  If you haven’t heard from me, reach out to me, it’s probably when I need it most.  Please. 

I never asked for this.  This wasn’t where I wanted to be at 34.  My life wasn’t supposed to go this way and I will slowly learn to accept that and move on.  Patience.  Patience from you, patience with myself, just pure patience.  This will not change overnight and I anticipate more tears will fall as I climb this mountain.  One day at a time.  This has to get better.  It just has too.  God did not keep me here to live this way.  He kept me here so that I could enjoy life to its fullest.  Each and every day I will continue to pray for the strength to do just that.  Thank you to a very loving cousin for those words of encouragement.  Time will pave my road to happiness and I truly believe that statement.  With the continued love, support, and prayers…I will win.  I will smile a genuine smile again and feel joy in life because everyone deserves that.  Including you. 
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9 Comments

MY NEW BRA!!!!

11/20/2014

0 Comments

 
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Let me just say...I love the picture above.  To me it says, Hey there girl (to myself)...Remember me???  You can still be sexy even through all of the scars and surgeries and I am going to prove that to you...just put me on...and look in the mirror...and smile at yourself.  You deserve it!!!!  One of the best things about this journey...has been the people it has lead me to.  There are many reasons why I write in this blog.  Some of those reasons are selfish as its therapeutic for me, however, the reason why I started this blog was to help other women.  In that process, I have come in contact with some of the most incredible and inspiring women.  I don't believe any of us ever intended to be on the path that we are currently on.  While cancer certainly causes a world of anxiety and stress like no other...it also has the ability to send us on an unintended path. 

One of those unintended paths came from a woman who reads my blog named Dana Donofree.  I have been contacted by a few people who have asked if I would promote their website, or their products on my blog. I have kindly turned them all down because I don't want my blog to become a market place for various products.  However, this was different.  I would be doing you a disservice if I didn't share this with you...and I mean that.  I received an email from Dana a few weeks ago.  I wont go in to the details of the email but she found my blog through another site and we started to relate to each other on so many levels.   Another "breast" friend who shares an experience with me, we have a lifetime of similarities ahead, and share a bond that only us breasties understand. 


When Dana emailed me informing me of her bra line, at first I thought, I don't really need another bra.  Then I visited her website and quickly realized, that yes, in fact, I do need another bra.  Why?  Because there aren't any products that are made for women who have had mastectomies that are cute, sexy, and comfortable.  Sure, I have my new bra's from Victoria's Secret that I was thrilled to go out and buy because they make me feel good.  Ask me what I have been sleeping in since my exchange surgery?  Okay...here is my answer...my binder bra!  That ugly, huge, ridiculously tight binder bra.  I was sleeping in this because its all I had that made me feel like things were being held in place.  Was it comfortable - no. Was it sexy?  I am not even going to answer that question.  It is quite possibly the most hideous piece of material ever sewn together and I am quite confident you all will agree.  I even went to a store shortly after my last surgery in search of something I could wear at night that was even remotely attractive.  Bless that woman's heart who was bringing me all of these bras.  I am pretty sure she saw the look of disappointment and hurt in my eyes when she realized I was a 34 year old being fitted for a bra only my grandma should be seen in.  I am not trying to offend anyone when I say that but it is the truth.  I am 34, I want to feel good about what I am wearing.  I don't want cancer to make me feel any older than I already feel with the bone pains and what I feel is the onset of arthritis from stupid medications.  I may not feel 34 on the inside, but I want to feel like that on the outside.  Regardless of your age, you deserve to feel comfortable and to feel GREAT about yourself - especially after everything you have been through. 


So what does any of this have to do with MY NEW BRA!!!!  So, I received my AnaOno bra in the mail last week.  I chose "The Rachel" in black/champagne.  I opened my package completely surprised and even more exciting for the ridiculously adorable packaging it came in. I don't know, something about that cute little box made me feel so special and happy inside.  Its the little things, I cant help it!!!  What was obviously more important than the packaging,  was the comfort and appearance of the bra.  At first glance, the bra was WAY cuter than I imagined it would be.  I am an underwire girl.  I have worn underwires my entire life so moving away from that was a huge step for this gal.  I couldn't help but immediately put this bra on to see if it lived up to everything I read on her website.  It absolutely did!!!  Within 5 minutes, I forgot I even had a bra on.  It is made of a very soft lace and mesh like material.  The band has a really soft velvety touch to it that leaves you forgetting you even have a bra on.  The fit was perfect, the comfort was perfect, and surprisingly...I felt sexy in it.  For me, this is the perfect, everyday bra.  I find my underwire bras get uncomfortable or start to feel too tight as the day goes on.  I end up tugging on the band trying to stretch it out and adjusting the straps to find a permanent comfort with them.  Though underwire push ups bras make my foobies look amazing...they are not ideal for everyday comfort.  Since my surgery, I have tried several bras.  By the end of the day I have indentations on my ribs.  Not good.  Also, I have a lot of scar tissue build up that forms around my left fold in to my ribs.  If any of you know anything about scar tissue and how it feels, the last thing you want is something pushing on it.  That is one of the things that I absolutely love about this bra.  For example, I am wearing it right now and I am consciously trying to feel it on me, and I just don't.  It's THAT comfortable. 

The reason I felt so compelled to write an entire blog about...A BRA...is because it's that amazing.  You deserve to treat yourself to something that is comfortable, that will make you feel pretty, and that makes you feel good about yourself when you look in the mirror.  If I find something worth sharing...I will...I am not going to keep this secret from you.  I encourage you to visit Dana's website and read more about her story and why she chose to begin this line of bras.  I know, for me, it makes my bra feel all the more special knowing it was designed by someone who completely understands what we have been through because they too have been there. 


"Dana Donofree and Jill Conley both have a dream to help young survivors feel supported, either with beautiful, comfortable lingerie or various kinds of financial assistance during treatment. With every purchase you make, AnaOno will contribute 10% of the sale to Jill's Wish. You get to feel gorgeous while supporting another woman in her battle" 

How amazing is that???  Here is a link to the website and a few pictures of the bras below. 

http://www.anaono.com/

ENJOY!!!!



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0 Comments

Today...I turn one

11/7/2014

2 Comments

 

Here I am looking at the day on this blog post...11/7.  One year ago today I woke up knowing that I was going to walk in to that doctor's office, and knowing that I was going to be told I didn't have breast cancer.  The hardest part of this for me, was that I had never been so confident about anything in my life.  I had never been so sure.  I am not sure if it was because I had this notion that there was just NO way I had cancer...NO WAY not me...or if I was trying to throw a blanket over a harsh reality to comfort me for the time being.  This day last year is one of the most vivid moments through out my journey.  I am not sad today.  I thought I would be.  I thought I would feel those feelings again, but right now I don't.  I wanted to write this blog today to document how 1 year feels for me and next year when I turn 2 I'll do the same...and so on until I am old and gray in my rocking chair.  Though there is a lot of time left in this day and my feelings may alter as the day goes on...in this very moment...the present moment...I choose to feel blessed that I have today.  I choose to feel blessed that I have been given another year to survive. 


I woke up this morning and almost forgot what today was.  Then it dawned on me...last year on this day I heard the words every person in the world fears.  I have anticipated this day since October 1 of this year.  Why?  Because, for me, my journey actually began the day I felt my tumor. In that moment, when I felt that lump and my stomach dropped...it was the first moment that I ever even considered that I might have cancer.  The last year has been one of the most challenging of my life and what I am thankful for today...is that I made it through.

But how am I feeling 1 year later and what challenges am I dealing with today?  Well, the fears of recurrence sometimes consume me.  Sometimes to the point where I just want to stay in bed all day.  Those thoughts are exhausting to say the least.  It's like a never ending marathon that goes on in side of my brain.  I have been attending weekly therapy sessions which my insurance does not cover.  The medical bills continue one year after my diagnosis.  Its necessary though.  I am currently receiving a therapy called EMDR (Eye Movement Desensitization and Reprocessing).  I will let you do your own research on that, however, it is focused on PTSD.  Has it helped?  Absolutely.  I have slowly learned to accept the fact that I do not have control over this life.  I have learned that I cannot marinade myself in those fears because it affects everything else that surrounds me.  I don't eat well, I don't work out, I am tired all of the time, I am stressed all of the time,  I don't sleep well, and I am in a constant state of worry.  Really, its the classic symptoms of depression but I have learned that all of those are choices I make.  I have fought the idea of taking anti-depressants and will continue to do so for as long as I can. I have made the decision to change the things that I can and I have done just that. 

Really, I have only acknowledged the changes I need to make in the last 3 weeks.  I wish someone told me how long it would take for my body to recover from chemo.  For a short period of time after chemo was done (9 months ago)...I must have felt like a million dollars because chemo fatigue was indescribable and for me, one of my 2 worst side effects.  So when chemo was done, I had all kinds of energy I wasn't used to.  I started to live my life again, as if I never had cancer.   I would fill up my days with these to do lists that really just became my mask for whatever fears I had that day.  The busier I was, the less I would worry right?  The answer is no because it would always catch up with me after 2 days and I would be so tired, and so hypersensitive to every little thing, that I would find myself crying because I was sure I had cancer again. When really, it was my body struggling to function because I had exhausted myself with way too many things.  In the last 3 weeks, I have learned to slow down.  I have learned its okay to sleep for 12 hours, to go to bed at 8PM on a Saturday night while everyone else is up drinking, to only do 3 things a day instead of 200.  I have a clearer brain now that I have started to slow down and its not running rampant all of the time.  With a clearer brain, comes clearer and more rational thoughts.  Where that headache used to be an obvious sign that my cancer had spread...has now been rationalized to...its raining outside, you haven't drank any water today, do that, take a pain pill if that doesn't work, and rest. 

Another thing that is new to me in the last week...are triggers.  I put on a sweatshirt last week that I hadn't worn since chemo.  We used to use a different laundry detergent then...one of which we cannot and will not ever use again.  The smell took me to such an awful place.  It reminded me of the drives to chemo treatments when I was scared out of my mind and dreading what the next 10 days were going to be like.  I tried to leave it on because I wanted to face this but I found myself slowly going in to panic mode and realized what I was doing wasn't making sense.  There is no sense in torturing myself to prove a point.  The fact of the matter is...I am going to have these triggers.  The colder weather, the smells in the air, certain soaps...there are always going to be reminders surrounding me.  So I ripped the sweater off, threw it in the dirty laundry, panicked for about 10 minutes and out loud told myself, "You are in your bathroom right now, you don't have cancer, its Halloween, your going to have fun tonight, your healthy, your cancer free".  My husband had seen that something got to me and asked me what was wrong.  His hugs are always so comforting to me and so I cried for a minute and moved on with the day.  It was the first time I had really noticed a trigger like that but I am proud of how I handled it.  I can tell you that my EMDR therapy is definitely the reason that I was able to rationalize that moment in my head. 

So today...I am 1 year old.  My life started over 1 year ago.  In that moment, I didn't know it was happening and I didn't realize it until recently.  I am a different person now.  I am a better person now.  I realize and appreciate the love of my family, the love of my husband, and the love of my friends more now, than ever before.  I have a certain patience I didn't have before though its unlikely I will ever be cured of impatience. Its not in my blood, but I am able to slow down and see life with a more thoughtful and thankful eye.  I appreciate the moments I get to pick up my camera and capture the smiles and laughter of perfect strangers.  I appreciate the ability to cook a healthy meal and pretend like I am Betty Crocker in the kitchen.  I am so thankful for the people that this journey has introduced in to my life.  Stand in a room with 30 cancer survivors and I promise you, you will be surrounded by strength, beauty, smiles, but most of all...appreciation.  As horrible as cancer is, when your faced with what feels like death at the time, you are quickly reminded of what this life has to offer and not to take it for grant it. I wish the world could understand that. Though I don't wish cancer upon anyone, I always say, that I wish the world could see life through the eyes of a cancer survivor.  We'd all be a little more patient, a little more thankful, and a little more sincere to each other. 

Though at times, and on my bad days, I have a hard time finding the smiles inside...I know those are the days I have to find the most patience with myself.  In some ways, cancer has changed me but I will not allow it to change all of me.    In fact, I have a fortune cookie message that is taped on my computer screen that says "Always accept yourself the way that you are".  That message applies to so many moments in my journey. From the moment I shaved my head, to the first time I went in public bald, to accepting my body after cancer invaded it, loving my body after a double mastectomy, and accepting that every day is not going to be easy. They say you become a survivor on the day you were diagnosed. That is the day you started surviving cancer, and fighting for your life. I didn't do it alone though. I have survived this last year because of my husband, my mom and dad,  my 4 best friends (Cassidy, Heather, Kelly, and Jen), my brothers, my cousins, my aunt and uncle, my neighbors, and old friends.    The special care packages that always brought tears to my eyes, the reminders of love from heaven, the words of encouragement, and mostly with their love and patience.  Today, that is what brings tears to my eyes.  Its not the fact that I had cancer.  Its the fact that I was surrounded by more love than most people will ever truly understand.  1 year later, that love and support is still there and I am so thankful for every single moment I am given to spend with each of them.

For most, January 1 is when your year starts over.  For me, its November 7.  November 7, 2013...is when I became a cancer survivor.  I am optimistic and confident, for the first time since I was diagnosed, that this will get easier as more time passes.  I ask for continued prayers, continued support, continued patience, and continued love as I continue on this journey to finding myself after cancer.  Next year, when I turn 2, I hope that I can write in this blog with the same appreciation for life that I have in this moment right now.  I hope that I can tell you I am running a 5K with no pain, that 8 hours of sleep gets me by just fine, that these aches and pains have started to subside, and that I am feeling like my old self again.  Though there is a very bold line that separates Jen before cancer, and Jen after cancer...I am still me.  There will always be those parts about me that will never change, that will always be who I am regardless of cancer. I will not let cancer define me.  I am still the caring, forgiving, stubborn, impatient (but less impatient), hard headed, outspoken, shy most of the time, funny, sarcastic, and  one of the most honest people you will ever meet.  Though at times I am tested in weakness,  I am stronger than ever before.  After all, I did kick cancers ass. I'm kind of a badass in that sense.  1 year later - I am the hero of this story.   


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A salute to my plastic surgeon...Dr. Ledoux

10/30/2014

1 Comment

 
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Oct 15th of this month was BRA day, Breast Reconstruction Awareness Day.  To be honest, I had no idea this day even existed until I was asked to model as a show and tell girl for my plastic surgeons office. Actually I think I volunteered but whatever.  At this point, I would probably offer to do  just about anything for PRMA. I have been, more than blessed, with the experience I have had with Dr. Ledoux and his staff.  I believe it is so important to feel confident in your decisions and trust your surgeons through-out this process.  So with that being said...this is my experience with my reconstruction process.   

You might remember a previous blog when I spoke of my original diagnosis - and my OBGYN telling me there was a great reconstruction/plastic surgeon next door.  How in that moment, I was trying to cope with the fact that I had cancer - while at the same time being told in, not so many words, that my breasts were going to be removed.  My Obgyn, my general surgeon, and my oncologist all recommended for me to go to PRMA.  This was all towards the beginning of my treatment and, to be honest, I was having a hard time digesting the fact that this was happening.  My breasts were going to be gone.  Cancer already took so much from me, and now its about to take a part of my body from me.  Sounds traumatic doesn't it? 

As I neared the end of my chemotherapy, My oncologist, Dr. Amy Lang, asked me if I had met with a plastic surgeon yet.  I was so busy sleeping my chemo off that this part of the process kind of left my brain for a few months.  When I told her that I had not met with anyone yet, she turned her chair towards me and said with so much confidence that she was going to refer me to Dr. Ledoux at PRMA.  She told me I would love him and how amazing he was but again, none of this registered at the time.  It wouldn't be until my first appointment with him that I would truly understand that she had sent me to the most perfect doctor....for me.   


I remember walking in to my first appointment at my PRMA.  I was scared.  I had no idea what to expect.  I didn't know what kind of information I was going to walk out of there with.  I had no idea what my options for surgery would be at that point.  I knew nothing other than...I was getting a double mastectomy at the age of 33.  All I had envisioned was having 2 insanely huge scars, no breasts, and wondered how I was going to look at myself in the mirror with confidence after all of this. 

Dr. Ledoux walked in to the exam room and I immediately felt a sense of calmness and comfort.  He would explain the different types of surgery but, for me, my best option would be immediate reconstruction with expanders.  I had lost 20 pounds through chemo and didn't have an inch of fat on my body.  To be quite honest, I am not sure I would have wanted any other surgery than this.  At the time it seemed a little overwhelming to think that I was going to need 2 separate surgeries, and that the process was going to take about 4-6 months to complete.  It's hard to digest everything in that first appointment because its another one of those appointments where everything kind of goes in one ear out the other. This is where my advice to you comes...take someone with you.  Do not go to these appointments alone.  My mother had brought a notebook which I secretly referred to as my cancer care book because she took notes on EVERYTHING - including the details involved in this surgery. 

After meeting Dr. Ledoux, I have to say that I felt better walking out of that appointment than I did going in.  I had the expectation that I was going to walk out of there a complete basket case with everything becoming so real.  It was comforting to know that I had this option. I said from the beginning that I never wanted to be vain about this. That I just wanted to look as close to myself after surgery as I did before.  It's what will make me feel good about looking in the mirror everyday.  It's what's going to restore my confidence after this hell that I have been through. So it IS important and not in a vain sort of way...but in a way that I needed to continue living my life as normal as possible when this was all done with.  Of course the absolute MOST important part was that I wouldn't have cancer anymore, but I needed the encouragement that I received in this first appointment.  The encouragement that I would wake up to something there and not just 2 scars.  The encouragement that I was going to be ok.  The encouragement that I would have a good outcome and that my doctor was going to put me back together and make me whole again.   Dr Ledoux held all of that inside of his hands and I knew that. I had to trust that he was going to put me back together both physically and unbeknownst to him...mentally as well.   

I feel lucky.  For many reasons....I feel lucky.  I obviously feel lucky to have my life.  As my husband said, I feel lucky that I caught this early.  Because of that, I was given the additional option of keeping my areolas, however, I would have to have my nipples removed as they contain milk ducts and I had invasive ductal carcinoma. From a physical standpoint, this was just another piece of good news for me.  I don't feel lucky for that though.  I feel lucky and I feel extremely confident that I was placed in to the best hands possible.   I know he doesn't ever expect it...but I can never repay Dr. Ledoux back for what he has done for me.  He pulled me through a portion of my journey that I had absolutely NO IDEA how I was going to cope with.   One day, my hair, my eyelashes, the weight, my life...would all come back to me.  This was the one part of me that was going to be gone forever.  I hate to refer to it like that but it is true.  This part of me would never return - at least I thought it wouldn't. 

The morning of my double mastectomy, I can tell you, I was in about as much panic as any one person could be in.  I cried the majority of the night before all the way up until 10 minutes before my surgery.  I had never done anything like this before.  My entire life, I have been healthy minus my asthma and a fractured foot.  I knew this was in God's hands but I was having a hard time releasing my fears to him.  (I still do today).  I had all of my pre-op work taken care of and there I was waiting in that room, IV in my hand, wearing a silly paper gown, no hair on my head, and scared out of my mind. Though my husband, mom and dad were all there to hold my hand...I was in a zone of fear. In this particular surgery, my general surgeon, Dr. Rosenthal and Dr. Ledoux would work side by side on my mastectomy and then Dr. Ledoux would take over on the reconstruction.  The first doctor to show up that morning, was Dr. Ledoux - with a smile on his face.  I thought to myself, why cant I just smile like he is right now.  Well, shortly after he started talking to me...I immediately felt that sense of calmness from him again. He sat me up, marked me up, asked me how I was doing...and then before our conversation would end he asked "Can we say a prayer"?  It was this very moment that I finally felt at peace with what was about to happen.  My fears were lifted as he asked for God to protect me and to guide the surgeons hands through-out the next 6 hours.  I cannot express, in words, what this moment meant to me but I was ready.

I remember waking up from my surgery, and though I was completely out of it at the time, my nurse wanted to take a look at my incisions.  This was the moment of truth.  I was about to look down and see what I had only envisioned would be 2 large scars.  Even though I knew I would have expanders in, I had no clue what I would look like.  The first words out of my mouth?  "I have more cleavage than I have ever had in my life".  Maybe it was the drugs talking at the time...the overdose of medications that I will blame on my husband, but it was true.  Though my breasts were gone forever, or at the very least in a pathology lab at that point, I didn't feel the way I anticipated I would feel looking at them for the first time.  Though recovery was difficult at times, I always say it was a walk in the park compared to chemotherapy.  As time went on, I healed, and we would start to move on to the next step...expanding. 

The most interesting, yet weird part of this process were the expansions. I would sit in front of a huge mirror, needle in my "breast" and I would just watch it grow before my eyes.  However, the BEST part about this part of the process, was that I got to say when I was done.  Hmmm??  What size did I want to be?  How many women get to watch their breasts grow right before their eyes and decide...yep! That's the perfect size for me! If I had to find a positive in losing my breasts - then this was it! The expansion itself was not painful...and what pain I would feel from them, I would relate to a post work out muscle pain.  Sore for a couple of days, nothing major, body adjusts...and then on to the next one 2 weeks later.  For me, it was recommended that I expand a little bigger than I think I might want to be because I was told the implants would appear smaller. Let me just tell you, these expanders - became 2 rocks on my chest.  I always laughed inside when I had to hug people because I felt like I was bruising them with these 2 things.  I was expanded to 370cc's and was exchanged to 400cc Mentor silicone implants 2 months after my final expansion.  Which, by the way, that exchange surgery was NOTHING.  I was in and out of the hospital and took a low dose pain pill for one entire day.  I left the final sizing up to Dr. Ledoux and, 2 1/2 months past surgery, I couldn't be happier with my final results.  I feel great in a bathing suit, bra shopping for the first time was awesome, and I never even acknowledge my scars.  Dr. Ledoux did an amazing job putting me "back together again". 

This is a part of my journey that I tend to get very emotional about because I can never quite come up with the right words to say.  So I will try this avenue...

Dr. Ledoux, 

From the bottom of my heart, I want to thank you.   I, my husband, and my family thank you for what you have done for me.  Thank you for that moment of prayer before my first surgery.  I will never be able to express to you exactly what that moment meant to me.  In that moment, I felt like I was family and I knew you were going to take great care of me through out this entire process.  This particular part of my journey could have been extremely traumatic but you made it the exact opposite.   From the first appointment,  to my first surgery, on to my exchange surgery, and follow ups...you have been my light through out this entire process.  I have always looked forward to my appointments with you because you assured me that I was going to be okay and that my end result was going to be something I would be proud of...and I am.  You turned this in to a very happy part of my journey.

You are a doctor, and your job is to perform a surgery on women but you are far more than that to all of us. What you have been able to give back to, not only myself, but all of your patients is so much more than that.  I know this because I have spoken to many of your patients who have the same reaction when we speak of you.  There was no other doctor for us and we are all so blessed to be a patient of yours.  My journey could have turned in a million directions, but I am so thankful that it led me to you as my plastic surgeon.  I don't believe there is another doctor out there that would have cared for me the way you have, who would have given me the results that I have, or who would take time out of their day to take a picture with me for my blog. You have gone above and beyond your intended call of duty for me.  I never felt like just another patient to you.  I couldn't be happier with the results, with how your staff has taken care of me, and with the continued support that you all show to your patients.  This is a part of my journey that I can close a door on with confidence and I am forever grateful to you for that. 

These words do not even touch how I truly feel, but it's all I can come up with.  Truly, I am just speechless. It brings me happy tears that I have been so fortunate.  Thank you for everything you have done for me and for being such an amazing soul to me through out this journey. 

Jen

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My first interview...LIVE TV

10/22/2014

3 Comments

 
Almost 1 year ago, I never would have believed that this journey would have taken me to where I am today.  Amy says it perfect..."You couldn't pay me enough money to go back and be that person again".  This journey has led me to a group of the most amazing, inspiring, and supportive friends I could ever hope for.  It has given me the opportunity to help other women through their own journeys no matter how small it might be.  It was never an easy road to get to where I am right now, but I am proud of where it has taken me.  I am proud to be a survivor and to be a part of such an amazing group of women.  I was so honored when I was asked to be a part of this segment on San Antonio Living.  The experience itself, was absolutely incredible.  Given the opportunity to bring awareness to the younger generation and encouraging them to do self exams and mammograms means everything to me. I am forever grateful to my support group for everything they have done for me and all of our ladies.  If you are local, I encourage you to join our amazing group of young survivors - and that goes for the young at heart too!  I now have a group of 40 women who have my back, who understand me, who "get it".  I couldn't ever ask for more than that.  For 6 months, I locked myself away. I was depressed, I felt alone, I had no idea how I was going to go forward in life.  I can never thank Sandra and Amy enough for creating this amazing group, for welcoming me with open arms, and for adding me as a board member.  I am forever grateful to both of them.  So without further or do...here it is. My first TV interview.  What an awesome experience.  Was I nervous?  ABSOLUTELY!!!  But life is about being vulnerable and opening yourself up to new experiences.  Let your guard down, put yourself out there, and see where life takes you. 

For more information on the BFF Young Survivors Group please visit our website:

http://bffsanantonio.weebly.com/

You can also contact Sandra directly at: 

210-562-6502 or via email: sanmiguels@uthscsa.edu

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3 Comments

From a husbands perspective...

10/13/2014

2 Comments

 
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Before I start, I need to say this.  We got lucky.  We got so freaking lucky.  Jen caught it early, Jen acted fast, our doctors kicked ass and we kicked the cancer out the door.  I have trouble expressing how hard it was and how much our family has been affected, because we are so damn lucky.  There are so many others in such worse situations than us, so how can I possibly put down how hard it was, how sad I was and how much it affected me?  I’m doing it because my wife is passionate about helping other women and other families.  She’s passionate and  this is not me feeling sorry for myself or our family, but a great outlet for me and hopefully to help others as well.

My wife was diagnosed with cancer at the age of 33.  We had not even been married two years.  An absolutely stunning, healthy 33 year old with no family history.  She took good care of herself, she ate well, exercised regularly, didn’t smoke and rarely drank.  Cancer was never on our radar.  It was not in our families, neither of us even understood what cancer was. 

The diagnosis left us both in disbelief.  It just happened so quickly.  She felt a lump, to an ultrasound to a mammogram to a biopsy.  Then we’re seeing a surgeon and an oncologist and developing a plan for surgery and genetic  testing.  I still have trouble believing she was diagnosed with cancer today.  I knew nothing about cancer and I knew nothing about what Jen was about to go through.  I did some research on the disease, but I did more research on her doctors.  I felt confident in them and felt confident that they had a good attack plan.  To kill the cancer, in my 33 year old wife.  Crazy.

I am a fairly emotional man.  Sometimes I am so proud of my kids it makes me cry.  At times, I am so in love with my wife it can make me cry.  The day Jen was diagnosed I cried.  I cried driving my car and I cried hard.  I sobbed, I struggled to even see the road.  After a few minutes of crying I made myself stop.  I had to be strong.  I had to be an emotional wall for my wife.  She would never know how much this was going to affect me and hurt me.  She still does not know today.  I made a decision then, that I would be strong for Jen and strong for our family and fight this head on.  Just like every other difficult thing I’ve done in my life.  No self-pity, no feeling sorry for myself.  Stand up big and make it happen.  In this case anything and everything I could do to help Jen be successful in her fight.

Obviously the diagnosis was a big shock to both myself and Jen, but telling the kids was one of the most difficult things we had ever had to do as a couple.  We didn’t know what to expect, so how were they supposed to understand and know what to expect?  They both reacted differently.  Eric, immediately broke down and started crying.  We hugged him and told him everything would be okay and not to worry.  Megan, being older, handled the situation a little differently.  She asked some intelligent questions and did her best to try and understand what was going to happen through treatment.  She surprised us the next morning with a painted survivor sign she had made the previous night.  Still very powerful for me and makes me incredibly proud of her and her big heart.  The sign is still hanging in our kitchen today.

The support we received from everyone was overwhelming.  My parents called me several times a week.  My business partner text me every single morning and asked “How’s Jen?” work colleagues, friends, neighbors, all offered so much support.  Jen’s mom moved in to help all the way through chemo.  Jen’s mom was a great support for us. We could never thank her enough for leaving her home, her husband, her dogs, and her horses to be here for us.  It was all very humbling and it was very difficult for me to accept everyone’s help.   But there is no question that it all helped me stay strong for Jen.  All the support and outreach that I personally received truly did help me to keep up my front for Jen.

My wife was poked and cut and put under, trauma here and scaring there all as part of her treatment; having to watch Jen go through all this and not me was, and is, a terrible feeling.  Even though the pain and recovery from the surgeries was rough, without question, chemo was the worse.  Chemotherapy may have saved her life, but seeing what those drugs did to her and having no control over the situation was extremely difficult.  Before it, during it, and now after it, I would have given anything for it to be me not her.  It was a completely helpless feeling.  Watching this medicine take your wife from you.  I don’t mean the baldness, or the weight loss, or the energy.  No.  I mean my wife, I mean her.  The fire, the passion, the laughing, the smiling, the affection.  Chemo took my wife from me.  Tough thing to think about, even more difficult to say.  However, I am confident I stayed strong for her through the entire process.  I am confident she never once saw me bend and that I supported Jen to the best of my ability.  All the appointments, meals, custom bedside electrical wiring, Epsom salt runs to the store, drains and the ten thousand other things I did while staying strong made a difference.

We’re almost a year since diagnosis.  Jen has physically recovered.  She is more stunning now than she has ever been.  She is working hard on healing herself emotionally and is making great progress too.  I am so proud of how Jen has taken this terrible thing and turned it into such a positive for others.  Her blog, the BFF’s, Instagram and how she has reached out and helped so many other women going through some of the same struggles Jen experienced too.   I still have not fully faced cancer head on; and I probably never will.  I still have not truly broke down and told my wife all my personal struggles, pain, and how this changed me; and there is no question, I never will.  My job was and is to be strong for her and I embrace it today.  There’s not a week that goes by without me reminding her, cancer will never win against us.  No matter what happens, if we mentally stay strong, we can take on anything together.  I love Jen with all my heart and I am so proud to be the man she picked to spend her life with. 


2 Comments

Dear Breast Cancer...

10/1/2014

5 Comments

 
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Well...it all starts today.    I wasn't sure how I was going to handle this month.  I wasn't sure where my emotions would be but anytime I take a moment to process it...I find myself choking up but I also find myself getting very angry.  I have always been aware of what this month was about but its never hit so hard as I believe it will this time around. 

October 27 last year was when I found my tumor.  For me, it's when my journey began.  It's when my fears started to kick in.  Even in that moment when I felt my tumor and my stomach dropped, I still didn't believe in a million years I actually had breast cancer.  I never thought I would be that girl, in my 30's, battling breast cancer, in chemotherapy treatment...bald.  In a few short weeks from finding that tumor I would find out that I actually was that girl.  So for those that have no clue what breast cancer is, or what it does to its victim...please read on...because this is the short story reality of breast cancer. Its not all pink ribbons and bows.   I encourage you to take a minute to really understand what this month is about.  Its for the fighters, the survivors, for those who are just beginning their battle, for the younger generation to become more knowledgeable, for the family members who have lost loved ones, and in honor of all the warriors we have lost.  Please take a moment to say a prayer for us all...because while we will all be doing our best this month to spread awareness...we will also be battling our own personal emotions that surround this reality.

Did you know???


* One in eight women will be diagnosed with breast cancer in their lifetime
* Breast cancer is the most commonly diagnosed cancer in women
* Breast cancer is the 2nd leading cause of death in women
* Each year it is estimated that approx. 220,000 women in the United States will be diagnosed with breast cancer and more than 40,000 will die.
* Although breast cancer in men is rare, an estimated 2,150 men will be diagnosed with breast cancer and approx. 410 will die each year.
* About 12 percent of women will develop breast cancer at some point in their lifetime...by contrast...if a women carries the BRCA1 mutation that percentage is increased to 55 percent of women and with the BRCA2 mutation 45 percent will develop breast cancer by the age of 70.


At the age of 33, I had a 5% chance of being diagnosed with breast cancer with the BRCA2 mutation - without the mutation - I had a .44% chance.  Breast cancer has changed me forever both physically and mentally.  It made me fear death even more than I ever have before.  Chemotherapy put me in my place and showed me a weakness about me that I never thought existed.  Though most would consider me strong because I survived it...internally...I felt weaker than I had ever felt in my life.  Chemotherapy forced me to look at myself in the mirror at my lowest point.  I had no hair, no eyebrows, no eyelashes and weighed 107 pounds.  Breast cancer took my breasts and left me with permanent, physical and emotional, scars. Most people don't understand that a mastectomy is the removal of all breast tissue.. Nothing that is there, is mine anymore. I have these fake boobs that I never asked for, that were not my choice but this is what I am left with.  Some may look at me and think I am superficial with my fake boobs but they have no idea these fake boobs saved my life.   Because I am BRCA2 positive, it will soon take my ovaries as well and put me in to menopause at the age of 36. With menopause comes hot flashes and a higher risk of osteoporosis.  I will never be able to carry my own child because of this.  Sounds horrible doesn't it?  This is what breast cancer is.  It isn't just some disease that you prescribe medicine for and in a period of time it is gone.  It leaves permanent marks, and for me, it will alter my future completely.

So with that being said...and in the spirit of breast cancer awareness month...I will write this...

Dear Breast Cancer,

Fuck you!  I hate you.  I hate you for what you have taken from me. I hate that for the rest of my life, your scar will always be there. I hate that I will never know what it feels like to have a baby grow inside of me because of you.  You are evil.  You've taken far too many lives but you will not take mine. I will make sure that I do everything in my power to bring awareness to how evil and deadly you really are.  I will do everything I can to make sure that young women are aware that they are not immune to you.  You tried to kill me...you tried to destroy me...but you did not succeed.  You may be my enemy but as the saying goes...keep your friends closer, and your enemies closer.  I will make sure that I know you better than I have ever known anyone else.  I will make sure that I educate and empower women to know exactly who and what you are.  I may have looked in the mirror at one point, stripped of my physical features, at my lowest point, but you know what?  I appreciate them all so much more than most people ever would.  So, thank you!  Thank you for giving me the opportunity to inspire women through you.  Thank you for taking me to such a dark place only to shine a light on a purpose for me.  Just like you have left your mark on me...you can be sure as hell that I will leave my mark on you.  I am stronger than you...I have proved that.  You tried to start a war with me and I won.  You have empowered me to empower women to take control of their bodies, to embrace their journeys, and to always be aware what you can do to them.  I can assure you that somewhere along the line...I will save a woman's life because of you,  and I will make another woman's journey easier because I know what you put us through.   You have given me the opportunity in life to help other women, and to save another human beings life through my knowledge and experiences with you. I know what you feel like, I know what you did to me, I know what you've taken from me, but I also know what you've given to me.  For that...I am fortunate...so THANK YOU and FUCK YOU! 

Yours truly,

The beautiful...once bald bitch...who KICKED YOUR ASS!



5 Comments

Find your purpose...

9/16/2014

2 Comments

 
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Sounds like a tall order doesn't it?  Purpose...what is purpose to a cancer survivor?  I definitely believe its something much deeper than most people could ever understand.  Actually, I am not going to limit that to cancer survivors.  Anyone who experiences a traumatic experience in life can appreciate what it means to find a purpose behind it.  Those answers might not be so clear at first while your asking yourself all of those whys, but find it.  It is there. 

My best friend sent me this the other day. It was a bad day.  I've had a few of those lately while I have been obsessing over these little pains as we do so often.  It came at the perfect time and I did exactly what it said...and right now I want you to do the same thing.  Put your hand over your heart...its beating isn't it?  If your reading this, the answer is yes.  Its beating for a reason.  God hasn't given up on you.   Don't give up on yourself.  Find your purpose. 

I know how difficult this can be when you are going through a hard time. Whether its a divorce, an illness, an unhealthy child, cancer...it is so hard to focus your attention on anything while you are consumed in those present emotions. But think about it...you spend so much time (and I know you do because I do) worrying about what the future holds for your health, in love, in life...why not focus that attention on something that has a purpose?  You cannot change what your body is going to do, or what lies ahead in life.  That's in God's hands.  So why not focus that energy on finding something that will bring you a more positive outlook on your current situation.  This too shall pass...no matter what it is. 

When I was in treatment, I had a million different ideas for what I wanted to do when it was all over.  I will tell you, none of those ideas ever formulated in to a plan.  Truth was, I didn't know what I would be capable of doing when it was all said and done.  I didn't know what I was in for emotionally but as time has passed...I am slowly beginning to direct my attention towards a few things that I have found passion in.  I love my photography business but its not my purpose in life.  In speaking to a friend the other day...out of no where I said, "I hate that breast cancer happened to me, I would never want to go through that again...but I also have never felt like I had a real purpose in life.  Breast cancer has given me a purpose, for the first time in my life...I feel as though I have a true purpose."  I said that with borderline tears because it was such a revelation to me. 

I know writing in this blog inspires other women, and I am thankful for the gift I've been given to put my feelings on paper in the most honest way possible.  Writing in this blog, for me, has begun to define that purpose for me.  No one HAS to tell me that I am inspiring to them...and that is the highest of all compliments that I can receive.  It makes me feel so happy inside, that even if for one second, I brought someone comfort in their own journey.  I know what that first chemo felt like, I know what it felt like to face the fears of having my breasts removed, and I know what all of this post cancer bullshit feels like, as well.  With that being said, I cant change the world.  I cant take away your journey from you, I cant erase what it is you are going through or make it go away...but I hope that I can make it a little easier for you.  Right now, in this moment...that's my purpose.  Providing comfort to someone else who is following in my footsteps.  I am certainly not creating world peace but finding a purpose doesn't have to be some grand adventure. 

Recently, my mother taught me how to sew pillows.  I will be working directly with my plastic surgeon to drop off care packages with these cute pillows and a matching bag for their patient's post surgical drains.  I have plans and hopes of getting involved with the local media to bring more awareness to this disease.  As more time goes on, I am learning that my passion is being directed more towards bringing awareness to young survivors.  This is NOT an old women's disease anymore.  Something needs to be done and I am a small duck in a very large pond but I will do anything and everything to this regard.  I believe my story is the perfect example for why younger women need to advocate for themselves and follow what their bodies are telling them.  Being turned away by a doctor and following my instincts, saved my life. 

Right now, this little bit of purpose that I have found within myself, has brought me hope and happiness.  It has made me feel good about what's to come.  Though I still have my fears, that some days will just rule my world, feeling as though I have a purpose brings me comfort.  Some peoples purpose in life is to be a mother, others is to save lives as a doctor, or a father's purpose to teach his daughter about love and life.   We all have a purpose here on earth and some of us will never be fortunate enough to really understand or discover that purpose.  Some people will float through their daily lives not truly appreciating or caring why they are here.  My purpose might change tomorrow but for right now, this is what I have discovered.   This is what brings solace to my days and I will take what I can get.  This simple little message, has been engraved in my brain for the time being.

My hand is on my heart...my heart is beating.  I have a purpose.  You have a purpose. It doesn't have to be huge but just know that it is there, acknowledge it, and embrace it.  You are alive for a reason.  Don't EVER give up!  I hope that after you read this blog, you will find encouragement and peace in your journey.  I want to inspire you, but I also want you, personally, to feel good about yourself and who you are and only you can engrave those thoughts in to your own mind. 







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